Look Ma, I’m in the Newspaper!
Heyo,
Just letting you know that I am featured on Page 2 of today’s Sydney Morning Herald for Rare Diseases Day. And yesterday I was on the Home page of the Sydney Morning Herald Website. You can read the story here!
What a surprise! Not only did I not know any of this was going to happen until lunchtime yesterday, but that there would be such a large reaction from everyone! Thankyou so much!
At one point in the day the story was the 2nd most read article on the Sydney Morning Herald website! I later found out that it was the 4th most read article for that day!
I really hope that my story might be able to help raise vital funds for research into curing EB and of course the many other rare diseases people are living with today.
If you would like to donate to help children and adults with EB, please go to: www.debra.org.au
Posted on Mar 1, 2013 by under 1 Comment
Hi Nikki, I also have EB, but I have Dowling Meara. I read
the story in the newspaper and was very touched by it. I hope you
have a wonderful day.